Jan 21, 2026 · National Organization for Rare Disorders (NORD®) NORD advances practical, meaningful, and enduring change so people with rare diseases can live their fullest and best lives. …

NORD’s Rare Caregiver Respite program was an absolute lifeline for our family this past year. With the respite program, I was able to select a family friend who I trusted, who was already adequately …

Can NORD help find a medical expert for my rare disease? Many patient organizations provide lists of medical experts. Search NORD’s Organizational Database to find disease-specific patient advocacy …

NORD is committed to breaking down silos and building bridges so that people living with a rare disease can achieve their best health and well-being. Our belief is that the NORD Rare Disease Centers of …

Discover NORD's mission to drive rare disease research, support patients, and advocate for transformative healthcare policies nationwide.

What Is the NORD ® Rare Disease Database? The NORD Rare Disease Database is an inclusive and comprehensive list of rare diseases based on information from established rare disease ontologies …

Help with Rare Disease Whether you need help getting a diagnosis, finding resources to assist in finding a specialist, finding a clinical trial, paying medical bills, or affording drugs, NORD is here. We provide …

Home / Understanding Rare Disease We acknowledge the hard work of families, caregivers and others with programs like NORD Caregiver Respite which allows people some time away while knowing …

Raising Youth Voices is a global collaboration between the National Organization for Rare Disorders (NORD), EURORDIS-Rare Diseases Europe, and Rare Diseases International (RDI) that is bringing …

The National Organization for Rare Disorders (NORD) is proud to be the official US partner for Rare Disease Day.